Mystery Lane

Mystery Lane

Tuesday, March 12, 2013

Jackson Update

It’s time for a Jackson update!  Seeing that he is the star of my blog, it’s time to let everyone know how the kid is doing.  Long story short, he’s had some ups and downs the last couple of months.
For starters he has been fighting off a cold or two.  Wiping those constantly runny, green boogers never get old.  Ha!  Here’s a prime example, Jackson was in his high chair and sneezed.  Big long booger comes out, down past his chin.  I run to get Kleenex.  Jackson flips his head around.  Big booger flies through air and is now spread across his cheek and into his ear.  Just as I reach him he grabs to rub it.  Thankfully I got there just in time to stop him!  I don’t even want to think about what that would have been like.  So yeah, fun times around here lately.  I also think he has had some kind of stomach virus too.  He’s had a couple of days of throwing up and some interesting colored bowel movements.  Some bouts of constipation have also made for some unhappy moments for us.  Don’t know what is going on with him, but for the most part he has maintained good spirits. 
Unfortunately, Jackson had 2 seizures a couple of weeks ago.  He was at school when he had them so I didn’t see them.  Not sure exactly what brought them on.  Either it was due to his being sick, a growth spurt, maybe it was just random.  It is always so disheartening and scary to me.  I’ve gotten used to him not having them and I really, really prefer it that way.  Then he has a seizure and it is a reminder of how lucky he has been to find the right medicine to stop them.  I hope we don’t see any more anytime soon. 
We’ve continued the Feldenkrais and Anat Baniel therapies and Jackson is doing great with them.  He moves differently, is more aware of his body and surroundings, and seems like he is developing in little ways.  It’s been great to watch the change in him.  It’s also been affirming of the risk we took in taking him out of traditional physical and occupational therapy.  I have come to believe that when you have a special needs child you have to be willing to take some risks.  Whether with therapies, medications or doctors, you have to do what you can to give your child the best chance at life.  It is scary, but as Teddy Roosevelt said ““It is impossible to win the great prizes of life without running risks, and the greatest of all prizes are those connected with the home.”  So true Teddy.
It’s never a dull moment with Jackson.  He’s always switching things up around here to keep me on my toes.  I guess somebody’s got to. 

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